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| Autism is not a puzzle and it is not difficult to understand. Autism is a variable neuro-anatomical anomaly characterized by a communications disorder which results in severely impaired social relationships. That is an "operational" definition I find useful. Once you have accepted this, it's a lot easier to live with and get along with autistics. The short definition, the one we should always carry around in our pocket, is that autism is a communications disorder. Regardless of where you are on the spectrum this is the common element. Even those with "mild" autism have profound problems because of this. It usually results in unnecessary devleopmental delays. Only by wrapping our minds around this can we understand the significance of its pervasive effects. Working with autistics, one must proactively confirm that information is: 1. Heard (or perceived) 2. Understood 3. Accepted or "HUA" for short. This seems to work quite well in the U.S. military, the best fighting force in the world. Parents and teachers will be effective only when they also understand and accept what the autistic is saying. This takes a creative approach best accessed in your right brain (the creative side). If you are always living in your left brain (analytical side) life will be frustrating, maddening, and stressful. This means communication may take longer than you expect. Budget time accordingly for best results. Avoid assumptions of understanding. As one of my medical mentors taught me, "When I assume, it makes an ass u me." Frustration and dysfunctional retaliation ensue, especially for professionals in positions of authority. About 10 years ago I asked a board certified child psychiatrist how he diagnosed Asperger's. "Do you use the DSM criteria?" I asked. "No," he said. "I can tell the patient has Asperger's if after 15 minutes I get the urge to strangle him." I'm not kidding. That is what he actually said. Without valid communication most efforts will seem wasted. The trick is to put yourself in the shoes of the autistic, not easy at first but highly productive in the long run. So give yourself an imaginary "empathy" pill and watch things get better. Most of the time neurotypicals are unaware of the details of the communication gap. That's because few of us are natural born detectives. Autistics are keenly aware of the communcation gap. The cure may simply be bridging this gap. Here are a few articles and links that go a long way to establishing a foundation of knowledge on autism: Emerging Aspergians Great insight has been furnished by those on the spectrum who have written about their lives and how they see the world. Their work is all over the internet. Here is one guide. Apparent Increase in autism may be due to past mis-diagnosis Many adults on the autism spectrum got the wrong diagnosis as kids. That's because we now know more about it than we used to. CDC determines prevalence of autism Is the high incidence of autism real? The Centers for Disease Control thinks so. Researcher finds lack of data supporting high rate of mental retardation among autistics Currently, most authoritative references cite a 75% incidence of mental retardation among autistics. This assumption may be based on bad science. No statistical relationship found between autism and schizophrenia Read the abstract of a 1991 study which helped established autism as a developmental disorder as opposed to a psychiatric disorder as had been traditionally believed. |
| Analogy: internet and autism Some autistics are auditory rather than visual. Most languages, except Chinese, are based on sound rather than image. What would it be like if we only communicated with words? Try a search engine. The majority of responses you get are not relevant to your question. With luck the most relevant ones appear on the first page because the internet has established a hierarchical structure. But what if all details carried the same importance? In some autistics all details carry the same weight in a completely novel situation. And some reservoirs of knowledge are only available by dial-up, not DSL or Cable. And too much traffic on a site will slow it down. And if we do not phrase the search terms just right, the yield on relevant answers drops. Considerably. |